The busyness of life picked right back up where we left off once we were home, only it seemed all the more stressful now that we had this black cloud hanging over us. William was ever-so needy, requiring nearly constant caring or soothing. As before the hospitalization, he appeared to be in considerable discomfort and always wanted to be held (by Mommy, in particular).
Tuesday December 22nd came with haste...and all day long we awaited the phone call from the neuroblastoma team at Sloan. Finally, around 6:30pm we received the call from Dr. Modak. After asking about William, he was nearly apologetic saying that the team is recommending William begin with two rounds of chemotherapy to try to shrink the tumor. He explained there are considerable surgical concerns, including the very large tumor and its encasement. The doctor explained, "this is one of the largest tumors seen with neuroblastoma, let alone it is in the very small body of a baby." He seemed to be genuine in his apologetic approach for the "unusual recommendation."
And so, we called the Upstate Oncology group to set up a chemotherapy appointment for the following day.
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